10.28.2014

Scarf Swap 2014

A few weeks ago, my sweet friend Chelsea (and fellow Houston Moms Blog contributor) over at the Perfect Catch blog put out a call for a Scarf Swap 2014. Since I'm pretty sure my fall/winter uniform is going to mainly consist of scarves, skinny jeans, and boots, I jumped right on that train. 


{Gahhh, for some reason my link up button isn't cooperating this morning. I'll try again this afternoon!}

And oh my goodness, I'm so glad I did. I got the SWEETEST scarf partner, Katie @ The Perks blog. {You really need to check out her blog too - she has some yummy recipes on there that have made my way into my meal plans for the next few weeks.} 

Anyway, she totally outdid herself. I am into everything buffalo check these days, so you can imagine my excitement when my package showed up. {Chels may have put a bug in her ear, too - just guessing :) } PLUS, she sent the sweetest package of "Thinking of You" notes, Juicy Couture nail polish in Treat, and little containers of Halloween play-doh for my kids. Katie, THANK YOU!!!! Loved everything and can't wait to rock the buffalo scarf when it drops another 10 degrees. If I can wait that long :)



Thanks for hosting, Chelsea! I'm thinking there has to be a spring equivalent to a scarf so we can do this all over again in a few months. Too fun!

Happy Scarf Day!

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10.27.2014

Quinn Cardio Update, Edition 785

I am beginning to accept that at this season in our lives, regular blogging just isn't going to happen. There are just not enough hours in the day, and that's ok. I still read my favorite bloggers regularly and get my "dose" in the a.m. But as for me throwing out any sort of content, it's beyond my energy level. 

That being said, there are definitely a few things that I still want to make sure I document, if nothing but for posterity's sake. One of those things is all things cardio-related for Quinn. That being said, I am so grateful to God that I've had nothing to report for 8-9 months. (If you follow me on facebook, you probably already know this update - my apologies for repeat content).

This past Monday we had her cardiology check up. Basically a full work up of EKG, chest x-ray, echo, consult with our cardiologist and more. 

Y'all. I just can't explain what I feel before these appointments. 

The uneasiness always sets in a few days before. I feel it in every fiber, every bone, and with every breath that I take. It can easily consume my thoughts if I don't consciously push them away. I see this child almost every waking minute and I know she's a walking, talking, crazy miracle. But what lies beneath?

We never know.

After a fun and inspirational morning at iBloom (more on that at a later date, but dang, what a blessing in my life this year), the twins and I headed out for lunch and then met Daddy for the Ryan drop off so I could attend the appointment with Quinn.

And like always, this child just blew me away with her grace, her smiles, her laughter, and NO TEARS. She seriously is just about the best patient I've seen. I don't openly brag much about my kids, but man, I am so proud of her tenacious spirit. It's beyond anything I could ever be.

Per usual, she was absolutely still during her lengthy echo (about 50 minutes long) and never cried out one time, even when I knew she was getting hungry and tired. We finally saw the doctor after about 2 1/2 hours and received wonderful news.

While her heart still looks "bad", and parts are "bad", it's still working GREAT for her. She is clinically doing wonderfully and developmentally tracking well. I could hardly hold back tears when the cardiologist told us that we earned another 9 month "hall pass". It was answered prayers.

See, the thing is, at some point the "bad" won't work "great". It will begin to weaken her heart and necessitate multiple repairs, including stenting out her pulmonary arteries to increase oxygen flow, replacing her Pulmonary Valve (right now only done in the U.S. with open heart surgery), and perhaps a few other things to assist her right ventricle.

And we don't know when the "bad" will come.

But we cannot focus on that. I have to continually remind myself of that, otherwise I would be gripped in absolute fear all of the time. And that would do my children (or my husband, or me for that matter) any favors. So today, we take the victory. One step, one appointment at a time. And thankfully and hopefully, the next one is a long NINE months away. Time to keep steppin' on.

P.S. This past month, we also celebrated the three year anniversary of Quinn's two open heart surgeries, or her "new heart days" as we call it. Three years? I don't even know how that is possible. In one instance, it seems like a lifetime - almost like it happened to someone else. And then the next, I can be brought back to those emotions, the smell of the hospital, the ding of the elevator, the swishing sound of the respirator, and the pumping of the ventilator. Oh my, little girl. You've come so far. 




Love to you all, 

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Better Late than Never... Proud to be a Mean Mommy

A few weeks ago, I wrote this post on "I'm proud to be a Mean Mommy" for Houston Moms Blog. While a few didn't exactly catch the tongue in cheek reference, I'm still a proud "mean mom" ;) Most days. 

A quick excerpt: 
"As a WAHM/SAHMmom, I am responsible for much of the weekday discipline. Clearly, it’s not my favorite – but I so strongly feel it’s a huge part of my job as a parent. I am 100% all about the wonderment of childhood, those magical moments where you can’t believe this is actually your life, and their absolute joy to show me their newest creations. But in between those incredibly rewarding times, I also have high expectations for my children. I am grooming them to be responsible, confident, and loving adults one day. Preferably productive members of society that can function outside the confines of our home. Gulp. And they aren’t going to achieve that if I am constantly permissive and passive in my discipline."
Read more here...


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